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Links
| Families | Professional |
|---|---|
| NHS Direct Online Encyclopaedia The NHS Direct Online includes a Health Encyclopaedia with information about illnesses, operations, treatments etc.. |
European Society of Paediatric and Neonatal Intensive Care European organisation fo healthcare professionals working in paediatric and neonatal intensive and critical care. |
| The Institute of Child Health This site has useful sections for parents and children, with lots of tips on what to expect when a child is admitted to PICU. |
Isabel US clinical support system. |
| The Meningitis Trust Charity providing support to families and raising awareness about meningitis. |
Pediatric Critical Care Medicine US information resource for professionals caring for critically ill children. |
| Meningitis Research Foundation The Meningitis Research Foundation provide information to the public on the recognition of meningitis and septicaemia and pathology of the disease. The Foundation also runs a befriending project, which has gained the national 'Approved Provider Standard'. This is a government standard for mentoring and befriending projects. |
UK Children on Longterm Ventilation NHS site intended for benefit of families and health professionals involved in care of children who need longterm mechanical ventilation. |
| Children's Heart Federation The CHF provides support and help to children and their families. |
Meningitis Research Foundation The Meningitis Research Foundation provide information to health professionals, on the recognition of meningitis and septicaemia and pathology of the disease. An interactive learning tool, endorsed by the Royal College of Emergency Medicine and the Royal College of Paediatrics and Child Health, is available from the site, designed for junior doctors working in paediatrics. http://www.meningitis.org/health-professionals/doctors-in- |
| CancerBACKUP CancerBACKUP online is Europe's leading cancer information service. |
training This information is also available at http://www.meningitis.org/assets/x/50156 and http://etool.meningitis.org |
| Headway Headway (The Brain Injury Association) produces several publications written for parents of children with head injuries. |
Pan Thames Paediatric Intensive Care (PICU) Network Source of internet based information for paediatric intensive care service commissioners, providers and users in the South East of England. |
| National Patient Safety Agency Please Ask is the National Patient Safety Agency's website for patients. If you or someone close to you is going into hospital, this website tries to help answer some of your questions and will help you to become an informed patient/parent. |
VPICU A virtual paediatric intensive care unit. |
| Contact A Family Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their health condition. The site enables parents to get in contact with other families, both on a local and national basis |
PICS The Paediatric Intensive Care Society web site |
| Action for Sick Children Action for sick children is the UK's leading Healthcare Charity, specialy formed to ensure that sick children always recieve the highest standard of care possible. |
PAWS This research project is assessing the effect of introducing the Paediatric Advanced Warning Score (PAWS) in acute district general hospitals and tertiary centres in the West Yorkshire region. This scoring system has been developed by Dr Simon Whiteley of Leeds Teaching Hospitals Trust to help staff predict when a child's condition is becoming potentially unstable, necessitating greater intervention or transfer to intensive care. |
| Child Brain Injury Trust (CBIT) CBIT supports anyone affected by childhood acquired brain injury. |
Health Quality Improvement Partnership (HQIP) Led by a consortium of the Academy of Medical Royal Colleges, Royal College of Nursing and National Voices, HQIP promotes better health services by supporting those responsible for quality improvement work. |
| National Voices Bringing together national voluntary organisations representing service users of health and social care to give them a stronger voice in policy-making. |
Department of Health Providing health and social care policy, guidance and publications for NHS and social care professionals |
| Children's National Service Framework A 10-year programme intended to stimulate long-term and sustained improvement in children's health. Setting standards for health and social services for children, young people and pregnant women, the NSF aims to ensure fair, high quality and integrated health and social care from pregnancy, right through to adulthood. |
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| Paediatric Epidemiology Group, University of Leeds Research within the Paediatric Epidemiology Group incorporates both investigations of the molecular epidemiology and environmental aetiology of chronic diseases as well as a range of health services research. The patterns and causes of the most common paediatric and adolescent chronic conditions, such as cancer, diabetes and glomerular disease, are areas of study, as is the delivery of care to these children and young people. |
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| Centre for Maternal and Child Enquiries (CMACE) CMACE aim to improve the health of mothers, babies and children by carrying out confidential enquiries and related work on a nationwide basis and by widely disseminating our findings and recommendations. |
