We regret that at this time PICANet are taking a temporary pause on processing new requests for data while we focus on completing the key deliverables for the national clinical audit. The pause will be lifted in early 2024 and we will release some updated guidance on anticipated processing timelines.
If you have submitted an enquiry or request before 10th February 2023, we will continue to process this/ respond to you as soon as we can. Thank you for your understanding.
In the meantime, you might find the PICANet Reports and their associated tables and figures helpful. They are available on our Reports and Annual Report Archive webpages. We also have a number of reports in relation to COVID-19 available on the COVID-19 webpage.
Following the pause, please email our Data Access specific email for all queries relating to Data and Information Requests: picanetdataaccess@leeds.ac.uk
Details of data access requests fulfilled each year are included in the Annual Report Appendices.
Information governance
PICANet has support and approval from the Health Research Authority Confidentiality Advisory Group to process confidential patient information without consent for research purposes under Regulation 5 of the Health Service (Control of Patient Information) Regulations 2002 (’section 251 support’ of the NHS Act 2006) for data collected in England and Wales. The reference is 21/CAG/0098 (research) and support is reviewed annually. Further details and assurances can be found in our Patient Privacy Notice and Fair Processing Statement.
Demographic details from the Republic of Ireland are anonymised in accordance with the requirement of the Irish Data Protection Officer.
Please be aware that from 31st July 2022, PICANet applies the National Data Opt-Out to the research database for data received from English hospitals. This means that, where a National Data Opt-Out has been set/ applied, data will not be included in any approved research projects.
Please be aware that PICANet cannot guarantee the time processing requests will take due to the varying nature, PICANet workload, and involvement of external organisations PICANet have no control over. Please expect requests to take a minimum of 12 weeks.
Please note that given the current Coronavirus situation new and existing applications and subsequent data releases may be delayed. In addition, we are prioritising urgent COVID–19 requests. Thank you for your patience and understanding.
HQIP have released their new charge categories and fee structure for English Data Access, available on their website.
Please contact PICANet Data Access to discuss these potential charges and fees PICANet may include.
Release of data – the process:
Please follow the steps below to complete a data request.
PICANet have provided a flow diagram to depict this information. Please click on this link access the full document.
Step 1:
- Please can ALL APPLICANTS firstly complete our PICANet Feasibility Data Request Form. Please note that PICANet only release data from the reporting periods that have already been published in our Annual Reports. On receipt of this form PICANet will assign you a reference number to be quoted in any future correspondence regarding this request.
- PICANet will review your form and return any queries. The PICANet Team may contact you directly to clarify details.
- When it is of a suitable standard and level of detail, PICANet will send your request to our Clinical Advisory Group (CAG) for comment and approval. If CAG have queries these will be presented to you for response and amendments where necessary.
- PICANet will pass on the CAG comments to HQIP where required, so please ensure the PICANet form and any subsequent HQIP documentation reflect each other accurately.
- This process takes at least two to four weeks.
- Data requests that relate to data from non-English PICUs only need to go through step one above only. PICANet will arrange a DSA to be completed as well to sign off data requests.
Step 2:
To comply with contractual obligations with HQIP who are the Data Owner of data collected by PICANet from English PICUs all data requests must follow the following procedure.
When your data request includes data from English PICUs:
- If your request is for aggregated and anonymous data at national or regional level, for a small number of data fields (less than 3), please check with us if you can submit an Information Request.
- If you have a more extensive or detailed data request, please complete the HQIP-Data Access Request Form or DARF. Guidance on the HQIP data access process, Data Access Request Group (DARG) meeting dates, and the forms are available on the HQIP website. Please utilise the guidance for completing data request applications in line with the HQIP requirements.
- Please note there is some overlap between the PICANet and HQIP forms and you can copy and paste information. Please make sure that the detail sent to PICANet and which we will distribute to the PICANet CAG are exactly the same as those supplied on the HQIP forms.
- HQIP require our signed agreement to the data request on their data access request form before they will consider the request. This means you must send picanetdataaccess@leeds.ac.uk the completed HQIP DARF and signed Data Sharing Agreement (DSA) inclusive.
- To make sure that PICANet and HQIP are able to link the two data request forms please use the same title and contact information on both forms. Please reference both HQIP and PICANet reference numbers where possible.
- Once approval from HQIP has been obtained for data from English PICUs or following approval from our Clinical Advisory Group (CAG) for other requests, the PICANet team will respond to you in due course.
- If you use PICANet data from our annual reports or as part of a data request, in all cases PICANet must be acknowledged as the source when reproducing or quoting any part of PICANet publication or data. Please contact the team to confirm citation.
Please use the following format when citing the Annual Reports report:
Paediatric Intensive Care Audit Network Annual Report (yyyy) (published mm/yyyy): Universities of Leeds and Leicester.
PICANet’s Guidance :
- All applications should receive a reference number from PICANet e.g. P123.
If you’ve applied to HQIP you should receive a confirmation email including a reference from them(E.g. HQIP 123).
Please include the reference number(s) in all correspondence. - Copy PICANet in correspondence even if it’s to one of the team directly, please add picanetdataaccess@leeds.ac.uk so the progress of your application can be kept up to date. Often more than one person is involved in the processing of your data request and this shared mailbox is the best place to send correspondence.
- Please be aware when completing the HQIP DARF, that if your request covers data beyond England, such as for Scotland, Wales, Ireland and Northern Ireland, you will need to remove all reference to those within your application (DARF). This is due to HQIP only being data controllers for English PICU data. You can leave references to both English and non-English in the PICANet request form.
- Please also pay careful attention to section 22 of the DARF, which visually depict the supporting evidence you will need to submit alongside your DARF. This is broken down into Applicant and Provider required documents. PICANet is the provider. PICANet’s Fair Processing Statement is available in our Committees and Policies section.
- HQIP may contact you directly with questions about your request. When emailing, please Carbon Copy (CC) PICANet (picanetdataaccess@leeds.ac.uk ) into correspondence relating to your request.
Contact Information:
If you have any questions please contact the PICANet team at picanetdataaccess@leeds.ac.uk